It was about three years ago when I got the official diagnosis from the Movement Disorder Specialist. It came fairly quickly from him. It took me about two years to get to that point. Like most of you reading this blog, I knew something was ‘off’. I dragged my left leg. I couldn’t sign my name legibly (well, never really could do that). I would shake and sway when under stress. It was time to stop wondering and get help.
I actually consider myself lucky. I live in a big city with a lot of resources, a Parkinson’s Foundation Center of Excellence and dozens of specialists from which to choose. There is a welcoming community filled with support groups. I have made lasting friendships with Persons with Parkinson’s (PWP) and their care providers. This is comforting.
However, I’m reflecting on my three years. How have I handled the news? How have a managed my outcomes? Am I making the most of the talents and my time?
Although I would like to ignore my relationship with PD. That is difficult to do. Every four hours my iWatch vibrates to remind me to take my meds. (What did people do before smart devices?). However, I tried to ignore it for about the first two and a half years after diagnosis. I wouldn’t tell anyone, not even close friends. Definitely not new ones. Then, with three years looming, I tried to remember why I wasn’t telling people. Embarrassed? Why?
I started telling people and I lived to tell about it. People react differently. That’s okay. I’m out of the closet for the most part with my social circle. Not with my work yet. Yikes!
Outing myself has allowed me to raise awareness, ask for help if needed and get them involved in some of my events and activities. I think this is a good tradeoff. You?
I’d like to hear from you. Please leave comments below.
Sheryl- I am glad you shared with me!! You have my support during with next adventure of your life!!