In this episode, we are talking with organizations well known for funding research in the Parkinson’s field – including MJFF and PF. We speak with the experts about the future in treating the symptoms, halting the progression and curing PD. And, we will speak to a PD patient who has a fascinating story and readily […]
007 Finding Answers Through Research Read More »
In this episode of The Parkinson’s Experience podcast, we continue our discussion on Opening Your Mind to DBS or Deep Brain Stimulation. In Part 1, a leading Movement Disorder Specialist discussed how DBS is a standard of care as well as who should consider it and why. In Part 2, we speak with one of
006 Open Your Mind to DBS Part 2 Read More »
Let’s be frank. Deep brain stimulation or DBS is brain surgery. The old joke comparing various tasks to ‘not being brain surgery’ is meant to compare that task to the difficulty of brain surgery. However, in 2020, it is best to keep an ‘open mind’ to DBS. DBS is now a standard of care for
005 Open Your Mind to DBS Part 1 Read More »
I have been thinking about how to write this blog for a few days. There is no elegant way to gradually introduce the topic or news. So, my Rabbi died a few days ago. It was sudden and devastating to his family, friends and community. I didn’t have a personal relationship with him, but he
Mourning and Growing Read More »
In this episode, we turn to the topic of Support Groups. We speak with a veteran support group facilitator about the importance of finding the right group for you. And, we speak to a couple who explain why they find their support groups invaluable. It is important that you know you are not alone in
004 You Are Not Alone Read More »
Part Two of “If you have seen one Parkinson’s patient, you’ve seen one Parkinson’s patient” continues with interviews of PD patients and their care partners to find out what life is like after the diagnosis. Of note in this episode, we will hear from a PD patient living alone with a care partner. Thank you
003 Part Two Seen One, Seen One Read More »
In this and the next episode we will explore what “if you’ve seen one Parkinson’s patient, you’ve seen one Parkinson’s patient” means. We will be speaking with four different patients and their care partners. Their stories are so inspiring, relatable and entertaining that we decided to include all of the discussion and split it into
002 Seen One, Seen One Parkinson’s Patient Read More »
Thank you to our sponsor – Boston Scientific, the maker of Vercise, a directional system Deep Brain Stimulation or DBS device. Boston Scientific is dedicated to transforming lives through meaningful innovation.
The Parkinson’s Experience Podcast Read More »
I have been trying not to dwell on unseen particles in theair and on my Amazon boxes. It can be very anxiety provoking especially for thoseprone to worry and sadness. How do westay safe, healthy AND normal throughout an unknown period of time while webattle COVID-19? Just as most of us had to do when
Adapting to My (Our) New Normal Read More »
A friend of mine is training for a climb up Mount Kilimanjaro in Tanzania. It is 19,000 feat above sea level and takes 5-9 days to climb. The view from the top will be amazing and transformative – probably almost a religious experience. Her goal is set and the hard work of training for it
My Mount Kilimanjaro Read More »
