This episode is one of the reasons I started this podcast called the Parkinson’s Experience. We have four people with Parkinson’s including myself sharing their lived experiences with all of you. The subject is the hacks we use to compensate for challenges we face while living our best life with Parkinson’s.
So, what is the definition of “hacks’? If you Google it, you will first see links to the HBO show of the same name. Not helpful for this purpose. Basically, most definitions I found were of negative connotations like hacking a computer or IT system. The word “hacks” in this context means shortcuts or tips. In other words, this episode is about the various strategies or compensations or adaptations people use to complete a task when their PD symptoms prevent them from accomplishing them they way they used to. For example, if you have trouble buttoning your shirts, what would be a hack you could use? Only wear shirts with no buttons? Do some hand exercises before buttoning? Allow more time to get dressed? Purchase a tool that helps you button our shirts?
What hacks do you use to get by? We all have them. I think you will enjoy listening in on the conversation the four of us had on this topic. I learned some new tips and insights. Frankly, it is very affirming to learn you are not alone and share the same struggles and same hacks with other people with Parkinson’s. As you listen, if we didn’t mention a hack you found helpful, please share in the comment section or on our Instagram or Facebook page. You can help out people in our community.
https://www.dbsandme.com/en.html
https://parkinsonsbuddynetwork.michaeljfox.org/v2/
Excellent podcast. Very useful information. Very practical.
One hack that was not mentioned is that I use a “Chinese” soup spoon. It’s usually a plastic spoon that is tilted up on all the edges. It really works – I haven’t had any spills since I started using it!
Another useful hack is to gently tap your leg if your freeze while walking.