Do people ask you to repeat yourself frequently? Do you think you are talking loud enough for others to hear? This is not uncommon in PwP. It has been estimated that approximately 90% of all Parkinson’s patients will experience speech issues at some point in their journey with this disease. Some people don’t know they […]
031 Device to Help You Be Heard Read More »
In this episode we tackle the extremely important topic of caregiving. Being a caregiver or care partner is often challenging and offers its own journey. It can be exhausting, frustrating, fearful, painful, as well as joyful, hopeful and rewarding. This is true for all caregiving not just for our love one’s with Parkinson’s disease. Today
030 Top 3 Tips for Caregivers Read More »
As of today, there is still no objective test to diagnose Parkinson’s disease. While we wait for researchers to find a biomarker, there is an organization using dogs to sniff out and detect an odor associated with PD. Yep, you heard it right. The dogs are super smellers and can detect PD with a 90%
029 Super Smellers Read More »
There are numerous opportunities around the country to get educated on Parkinson’s disease. There are books, videos, webinars, websites, and educational classes offered by clinics and outreach centers, as well as national foundations and organizations. It is very important to start your education very soon after diagnosis and continue to learn the rest of your
028 Education and Advocacy – a 1-2 Punch Read More »
In this episode we speak with Dr. Shill again to get an update on the COVID -19 pandemic, the vaccines and how this all relates to Parkinson’s disease. Dr. Shill gave us a fantastic overview in August 2020 in episode 11 if you want to revisit that one. Also, we are trying something new on
027 COVID PwP Experiences Read More »
There is a special place in Portland, OR where an enthusiastic, trained fitness coach built a gym dedicated to helping people with Parkinson’s. She calls the people she trains – Fighters. That is very appropriate and sets the tone for what she expects from them. In one building they can take classes in drumming, singing,
026 Parkinson’s Fighters Read More »
In this episode we discuss the genetic connection to Parkinson’s. It doesn’t matter if you know you have a genetic mutual, if you know you don’t have one or you don’t know and don’t want to know, you will learn a lot about how the research into the genetic mutations linked to PD is leading
025 Answers in Your Genes Read More »
Did you know that a dog can be trained to help People with Parkinson’s? It’s true and amazing to learn about. When trained to service PD patients, the dogs can help with freezing, mobility, exercise, get help, fetch medications, push a wheelchair, protect and provide comfort. Most of all they help restore dignity, confidence and
024 PwPs Best Friend Read More »
We have been tackling the decisions that people need to make for their healthcare insurance choices in our first series of episodes on a topic. Next up, long term care insurance options. There are 3 broad choices people can make. Which one depends on your situation. This is another very important, yet confusing life choice.
023 Long Term Care – To Buy or Not to Buy Read More »
Recently, the newsletter for my community where I live asked me to describe my perfect day in my adopted hometown. I could use my imagination. Sounded like a fun exercise so I sat down and wrote the below. I thought I would share with all of you. What is your favorite day in the community
